Bleeding and Clotting Disorders

• von Willebrand disease (VWD)
• Hemophilia (Factor VIII or Factor IX deficiencies)
• Platelet function defects

• Rare factor deficiencies
• Protein C andS deficiencies
• Prothrombin gene mutation
• Thrombotic Thrombocytopenia Purpura (TTP)
• Hyperhomocysteinemia
• Elevated LP(a) (also known as lipoprotein(a))
• Factor V Leiden
• Antiphospholipid syndrome (APS)
• Antithrombin III gene mutation

• Dr. Shawn Jobe, Director of the CCBD
• Dr. Joan C. Gill is a faculty member of the Medical College of Wisconsin (MCW) and a research investigator at the Blood Research Institute (BRI). She is an established investigator and a lecturer on the topic of bleeding and clotting disorders on a national and international scale.
• Dr. Shawn Jobe and the staff of five hematologists provide these services for issues involving bleeding and clotting disorders and their complications:
  • 24-hour emergency care and consultation
  • Comprehensive evaluations and long-term treatment plans
  • Expert diagnostic and follow-up services
  • Consultation for infusions/transfusion therapy at hospitals
  • Manage surgical and medical procedures for CCBD patients
  • Develop educational material for CCBD patients, providers, hospitals, schools and daycare facilities

• Assist in assessment and treatment of bleeding and clotting episodes and evaluation of clinical responses to treatment protocols
• Coordinate outpatient clinic appointments and treatment plans for inpatient care and outpatient surgical and dental procedures
• Provide education and in-services to patients and their families, patient schools and daycares, and community health providers
• Provide education for home care management certification

• Provides insurance verification
• Identifies financial assistance programs
• Provides educational opportunities
• Assists with planning

• Conducts assessments of family needs
• Completes identification of and referral to resources
• Provides supportive counseling
• Provides scholarship opportunities

Every person with hemophilia needs a regular checkup by a physical therapist. The physical therapist at our HTC is aware of the problems caused by bleeding into joints and muscles. She is trained to plan a special program geared toward age, needs and interests.

• Obtains family histories and reviews inheritance patterns in families
• Provides education on genetic issues

Our pharmacist works in collaboration with our adult and pediatric hematologists in the dispensing of clotting factor products to our patients in a fast, efficient and accurate manner. Our pharmacist oversees the Public Health Service 340B Pharmacy Program for eligible patients. Our overall pricing structure, coupled with the discounts provided by the 340B program, allow us to dispense clotting factors at significantly reduced prices, saving millions of dollars. Our pharmacist also provides medication therapy management for our patients, including reviewing all medications prescribed, the positive and negative effects medication may cause, and the therapeutic benefits of medication and how it functions.

• Places orders for factor replacement products and supplies.
• Arranges delivery of products and supplies directly to patients’ homes.